Fan's Disease is Like "Science Fiction Horror Story"
Fri., Jan. 13. 2017 12:13pm EST
Please join us in praying for a longtime ApX fan named Martin, who is suffering with a terrible skin disease called Morgellons. We'll let him describe it to you:
This stuff is not only on my face, it's all over my body and it's like something out of a science fiction horror story. While this is a fungus, it's a lot like a regular plant in how it's growing on me. It's like some kind of creeping vine type plant and I'm peeling off large chunks of it into towels that get filled up with it.For more information on Morgellons, go to http://www.thecehf.org/morgellons-disease-treatment.html. If you're a doctor and would like more info on Martin, you can email us at firstname.lastname@example.org.
To get rid of it I have to remove it with my hands and with towels and a person has to develop skill and get their hands and mind trained like someone learning to play a stringed instrument with their eyes closed in a way. It takes a lot of work because this stuff has been growing on me for years and there's layer after layer to get off.
It's like a box of tissues where every time you pull one out another one pops up because this stuff gets laid down in a growth matrix and it doesn't care if it is growing over the matrix that was laid down already, and that process has continues for quite some time until enough built up to become noticeable to me.
As far as I know, this stuff is pretty harmless in that it doesn't directly attack your body … But as it builds up, it reduces your mobility over time and about a year ago before I remembered having it before I was telling people that it was like I had bungee cords around my limbs so that if I moved one way it was like I was stretching the cord out and the other way my limb would be pulled "back into place."
I was joking around with someone about this effect and saying that I think it's helping me to stay in shape because it was like I had a built in exercise machine built around my body. You have to try and maintain a sense of humor in situations like this, right? So, it isn't so much a matter of getting healed as it is a matter of having the strength and skill to "weed the garden on my body".
Unfortunately, it's like pulling weeds from a large field where new ones are growing all of the time, or like using a leaf trimmer to try and denude a huge bush that overall is growing almost as fast as you can trim it. You trim one side, move to the other, and come back and find the side you've trimmed has mostly grown back.
Now, there might be some oral anti-fungal medications that can help me from the inside, but until I can connect with a doctor who wants to get excited about identifying what this stuff is and is willing to spend time with me so that I can help them understand from my memory and experience, I'm probably not going to get to try any medicines like that.
For years I and different doctors were assigning other causes to my symptoms because people operate from what they know about already in most cases. Way back in 2002 I went to the doctors because it felt like I was walking on a boat dock that was undulating beneath my feet. The doctors called it vertigo and scanned my brain but didn't find anything and didn't know what else to do.
I just got used to that feeling and did my best to ignore it since it seemed like maybe I had some type of nerve damage in my feet or something. Now that I'm unwrapping strands of this stuff that weave between my toes and around my heels and under and over my feet and up my ankle to the rest of the mass on my body I know why it "feels like I'm walking on a boat dock".
The socks and shoes compress the loose mass on the bottom of my feet so that there's a layer of it that shifts around as different areas of it are being compressed or released while I walk.